GENETIC LITERACY IN ADOLESCENTS WITH GENETIC DISORDERS: A BIOPSYCHOSOCIAL AND CLINICAL APPROACH

Authors

  • Ramón Miguel Vargas-Vera
  • Piedad Gisela Mejía-Gavilánez
  • Martha Placencia-Ibadango
  • Saúl Alexander Alencastro-Placencia
  • Jorge Luis Gunsha-Aguilar
  • Andrea Jimena Tipán-Hidalgo
  • Melanie Nicole Lino-Mejía
  • Karen Soraya Vargas Silva

DOI:

https://doi.org/10.56238/sevened2026.020-018

Keywords:

Genetic Literacy, Adolescents, Genetic Diseases, Psychological Adaptation, Genetic Counseling

Abstract

Genetic literacy constitutes an essential component in contemporary medicine, particularly in the management of adolescents with genetic disorders. This population group faces complex challenges encompassing biomedical, psychological, and social dimensions. The aim of this chapter is to analyze the role of genetic literacy in adolescents with genetic diseases, its relationship with psychological adaptation, and its clinical implications. The components of genetic literacy, associated factors, empirical evidence, and the role of genetic counseling are reviewed. Evidence suggests that, although levels of genetic literacy are often low, adolescents may present adequate levels of psychological adaptation, indicating the influence of psychosocial factors. An integrative biopsychosocial model is proposed to optimize clinical and educational interventions.

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Published

2026-05-04

Issue

Pathways to Health: Innovations and Approaches in Health Sciences - 2nd Edition

Section

Articles

License

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

How to Cite

Vargas-Vera, R. M., Mejía-Gavilánez, P. G., Placencia-Ibadango, M., Alencastro-Placencia, S. A., Gunsha-Aguilar, J. L., Tipán-Hidalgo, A. J., Lino-Mejía, M. N., & Silva, K. S. V. (2026). GENETIC LITERACY IN ADOLESCENTS WITH GENETIC DISORDERS: A BIOPSYCHOSOCIAL AND CLINICAL APPROACH. Seven Editora, 256-279. https://doi.org/10.56238/sevened2026.020-018